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I have been reading a recent issue of ms matters (quarterly MS Society magazine). It had invited readers as part of MS Week, what they thought was the most common misconceptions around the disease – usual stuff – wheelchairs; appearing to look well etc. One of the more common misconceptions centred around fatigue, how it

wheelchairs not sexy – shocker

Common complaint from people with disability is that adaptive devices – wheelchairs etc – aren’t sexy. They are commonly black, grey, beige and depress the hell out of their users. Interesting letter to ms matters recently posed the question “What if James Dyson had a close relative who was disabled?” Cool – imagine that –

Health talk online

Even with all the support in the world, diagnosis of a chronic illness can be a dreadfully lonely experience. While the MS Society and the MS Trust and the nurse assigned to me were all utterly wonderful when I was diagnosed, I think what I needed (need) more than anything was to connect with other

MS Trust open door

open door is the quarterly newsletter from the MS Trust. It largely reports on research results and the like, but despite this, is very readable. The current issue (just arrived) deals with posture, depression, misleading stem cell treatments and the impact of progressive MS on family life amongst other things. Items that caught my eye:

pain

Currently experiencing a lot of neuropathic pain in my feet and legs. It can’t be due to forgetting the tablets too often as I have remembered to take them the last few days. I am going to continue to take them at the current level for this week and if no better, I’m upping the

The eyes (will) have it

I have been waiting for two months for the letter deferring me to my local hospital eye dept. (I need glasses to correct my doublevision). I chased my neurologist up over the phone today. My Uber-Neurologist’s secretary apologised on behalf of the consultant (previously referred to as Dr Somebodyorother) who saw me, explaining that they

Alcohol

It has been amended since, but I once laughed at a section in the MS Society publication “What is MS?” which described potential problems when drinking alcohol.* The problems highlighted included balance, bladder control, slurred speech and double-vision. “So how do I know when I’m getting drunk then?” I thought. Last week I had a