An assault on the senses

I’ve looked deep into the eyes of the MonSter. When I did, everything shimmered with radiating rainbow coloured clouds. Whenever I glance to the left, he wiggles his outstretched claws and warps the atmosphere so that everything I see, I see twice. When I stroke my hands across his shaggy hide, my fingertips often tingle,Continue reading “An assault on the senses”

“C’mon get in the car. Let’s go for a ride somewhere…”

“So, where are you guys from? “The UK? Do you guys know Totten-Ham? “See, I follow your soccer and I support Totten-Ham Hotspur. I’m a Hotspur fan. “Do you know why I support Hotspur? “Well, I’m a fan of the Dave Clarke 5, and they’re from Totten-Ham, and they support Hotspur. “Do you know theContinue reading ““C’mon get in the car. Let’s go for a ride somewhere…””

A gift to medical science

One of my new year’s resolutions (made in April or thereabouts) was to keep in touch with people more; become a little bit less of a hermit, and generally be more sociable. Those of you who know me well, might think that a bit of a tall order, but I figured the COVID lockdown hadn’tContinue reading “A gift to medical science”

The Magical Brain

Blimey, this feels a bit like a newsletter, but I think there’s a few updates and loose ends on recent posts to tie up, so here goes: Fampridine I have my first official batch of fampridine to help with my mobility. As mentioned before, I hadn’t really noticed how much it was helping me walkContinue reading “The Magical Brain”

Fampridine trial thoughts

I’ve just come off my trial period of Fampridine and I’ve decided to carry on with it. Fampridine is a potassium channel blocker which ultimately means that messages can travel along nerves more efficiently. It’s prescribed for MS patients like me, with a walking disability. It’s something I would take alongside the other medications I’mContinue reading “Fampridine trial thoughts”

Postcard from Osteoporopolis

Warning: Tired travel analogies may continue to be employed in this post. “I know the C word and the F word. The C word is cor blimey, and the F word is flippin’ ‘eck” – Rat, lead singer of Chesterfield based punk band The Bland on stage at the Take Two club, Attercliffe c.1988 It’sContinue reading “Postcard from Osteoporopolis”

A postcard from Limboland

A month ago, if you asked me how tall I was, I’d say I was a six footer. It seems I’m not. I’m a five-foot-ten-and-a-half short-arse apparently, so essentially I’ve lost an inch and a half (4cm) in height. Even if you consider I may have always rounded up by half an inch, and IContinue reading “A postcard from Limboland”

The aftermath

Warning: this post contains experience of intense pain and some details of sensitive medical procedures. Sometimes I think of my MS as a monster. A monster who is always there tugging at my neck, poking me in the back, tripping me up or holding my ankles like a deadweight. As a child of the ‘70s,Continue reading “The aftermath”