Foot-ups, Fampridine and familiar faces

The other day was a good day for me and my MS. Not because I felt any better or any different, but because I got a few things sorted, and I dealt with positive healthcare professionals as I did so. Firstly, I had a hospital appointment with a cheery orthotics specialist to fit me withContinue reading “Foot-ups, Fampridine and familiar faces”

Thanks where it’s due for a badge of blue

OK, so purely in terms of disease progression and mobility it hasn’t been an easy year for me (pandemic? …what pandemic?) so I’d just like to give a shout out to my Derbyshire County Council colleagues in the Blue Badge team for processing my application and delivering a shiny new badge to me in lessContinue reading “Thanks where it’s due for a badge of blue”

Accepting the stick man

As I mentioned in my last post, I have recently started Ocrelizumab infusions. After a year of lockdown, this has involved a couple of trips to the city for long days in hospital hooked to a drip and, face-to-face interaction with other living and breathing human beings outside of the family bubble. I have noticedContinue reading “Accepting the stick man”

Ocrevus checklist

I’ve just had part 1 of my initial Ocrevus infusion. Beforehand, I asked the MS community on Twitter for their top tips for infusion day and I thought I’d combine them with my observations so that I can share them here. This may be useful for new Ocrevus patients, and I’ll also refer to themContinue reading “Ocrevus checklist”

Gloves off

Well, I knew I’d be tempting fate to say that I was feeling fitter and more mobile. It seems that the old MonSter has found a chink in the armour and has left its footprint behind in the form of a few new spots on the MRI. My neurologist has decided to advise exactly whatContinue reading “Gloves off”

“It’s a miracle!”

I don’t want to tempt fate and I don’t want to count chickens before they’ve hatched or any of that but… …It seems I can walk again. Now, this doesn’t mean I’ve been to see some Jim Jones style preacher, and it also doesn’t mean I’ve quaffed some magical elixir derived from a temple inContinue reading ““It’s a miracle!””

The angel in the bracken – an appreciation of David Cobb

A quarter of a century ago, as a geology student, I spent the best part of my summer mapping Ordovician volcanics on a mountain in the Snowdonia National Park. With only the local wildlife and the occasional sheep farmer for company, and with the sun slowly blistering its way through the sky, I’d enjoyed theContinue reading “The angel in the bracken – an appreciation of David Cobb”