Blitzkrieg

One of the things my brand new neurologist did for me when I met him earlier this year is confirm my diagnosis of restless legs syndrome (RLS). It’s something that I’ve been wondering about, on and off, pretty much since diagnosis, so it’s ‘nice’ to have it confirmed. It’s not a symptom of MS, but

Back to Blighty blues

I’m just back in the UK after a fabulous trip to Australia and Singapore. I don’t normally do this, but while I was away, I re-evaluated things a little. What I should be doing to make myself happier, more comfortable and healthier. The thing about Australia is that there are so many similarities to home

Mild relapse?

I have been on beta interferon (Rebif) for nearly two years now and in that time I haven’t had a relapse. Or have I? Beta interferon is supposed to reduce the likelihood of having a relapse and minimise the effects if you do get one. Back in January 2009, when I came off gabapentin, I experienced

Sativex to get a licence in the UK

According to the MS Trust, once the wording on the patient information document has been approved, Sativex will be getting NICE approval in the UK as early as this month (April 2010). My neurologist dismissed Sativex at my last yearly meeting, so it will be interesting to see his position in June. I need something

Unlike father unlike son

My Mum used to say that my Dad (a former cross-country runner) would often wake her up in the middle of the night by running in his sleep. His legs and feet going like the clappers. When woken and asked to explain he would mumble something about running across the fields and ditches of his

pain

Currently experiencing a lot of neuropathic pain in my feet and legs. It can’t be due to forgetting the tablets too often as I have remembered to take them the last few days. I am going to continue to take them at the current level for this week and if no better, I’m upping the

Drug experiments

It’s official, I have been told by my GP that I can experiment with drugs. Well, actually, no. I have been given the go ahead to increase the dosage of the amitriptyline to try and weigh up the pros of pain relief and the cons of the drowsy side-effects. The side-effects are something I have

Mr Pharmacist….

….won’t you help me out today, in your usual lovely way Popped into the chemists today to see if the “NO ALCOHOL” warning on my amitriptyline tablets, really means NO ALCOHOL. A twinkly-glassed, tank-topped, phar-therly figure appeared from the back room as if by magic and assured me it was OK on the dosage I

My MS History – Part Six

After one more session of double-checking with the consultant where he had yet another student in tow – it seemed I was becoming a textbook example of nystagmus – it became apparent that the steroids really hadn’t done their job. So to suppress my existing symptoms I was prescribed Gabapentin. I had been given details