Hi! How are you?

“I’m pretty shit to be honest. I’m in the crap gap. “Sorry, I should explain. It’s that time between my medication wearing off and my next dose or infusion. I get an infusion every six months… “In hospital, yeah. I have to go to Sheffield for it. I get a day off from work for

DVLA 2022

Like most MSers in the UK, I have to renew my driving license every three years. What should be a simple job – where I tell the licensing authority (the DVLA) that nothing has changed and I get my licence back – often turns into a year-long tug-of-war between me and the authorities. Because you’re

The aftermath

Warning: this post contains experience of intense pain and some details of sensitive medical procedures. Sometimes I think of my MS as a monster. A monster who is always there tugging at my neck, poking me in the back, tripping me up or holding my ankles like a deadweight. As a child of the ‘70s,

Alcohol

It has been amended since, but I once laughed at a section in the MS Society publication “What is MS?” which described potential problems when drinking alcohol.* The problems highlighted included balance, bladder control, slurred speech and double-vision. “So how do I know when I’m getting drunk then?” I thought. Last week I had a

Yearly neurologist meeting – 2009

Yesterday, I saw my neurologist’s registrar – Dr Somebodyorother plus one student. I had to recap my entire MS history from Day 1 again. I always find it difficult to remember the relapses prior to diagnosis as I didn’t recognise them for what they were at the time. I did my usual set of tests.