I see the media are reporting that the BBC Radio journalist Allan Robb has died.
Allan had MS. I don’t know what type of MS it was and I don’t know how he died.
I am assuming that the MS was a contributory factor in his death as the media are implying that his death was actually caused by MS, which I have always been told is impossible. “You will die with MS, not of MS” is the mantra bandied around by MS nurses and the like.
Take a look:
- The Guardian – “…has died aged 49, after suffering from multiple sclerosis.”
- BBC website – “…has died at the age of 49. He had been suffering from multiple sclerosis.”
- All media Scotland – “…has died aged 49. He had been battling multiple sclerosis.”
- New Statesman – “…dies of multiple sclerosis”
Nice use of the words “suffering” and “battling,” as well, I’m sure you will agree.
This sort of lazy journalism does nothing for the image of people like me (and probably you) with MS.
Either that, or all the health professionals I have met in the last couple of years have been telling me lies. I’d like to think that an MS specialist has more knowledge of the disease than a journalist, anyway.
Anyway, further to this, I like to test out the UK’s MS charities’ use of social networking. After Allan’s death had been reported, I sent two tweets each on the subject to the MS Trust, the MS Society (UK) and the MS Resource Centre to see if any respond. That was three days ago, so far no replies – watch this space.