Back to square one

Just like the election of a pope, or the announcement of the winner in some Saturday prime time family entertainment bollocks, I expect you’re all on tenterhooks wondering which disease modifying medication I’m going to plump for. I don’t know 100%, but here’s my quick notes so far (apologies for superficiality): Beta Interferon (Rebif, Avonex,Continue reading “Back to square one”

The Beta Interferon blues – update

After just two injections I can feel the familiar feelings returning. Aside from the flu-like side effects (achey joints), I have been waking up, not suicidal, but with little enthusiasm for life shall we say? One phonecall to my MS nurse later and I can announce that Rebif and I are officially no longer an item.Continue reading “The Beta Interferon blues – update”

The Beta Interferon blues.

I’m about to go back on Rebif after a four week trial period of coming off it. It wouldn’t be the first time I’ve done this, I tend not to take it on holiday (just a hassle) or over Christmas (to give myself a break). So, have I noticed any changes? On the negative side,Continue reading “The Beta Interferon blues.”

Back to Blighty blues

I’m just back in the UK after a fabulous trip to Australia and Singapore. I don’t normally do this, but while I was away, I re-evaluated things a little. What I should be doing to make myself happier, more comfortable and healthier. The thing about Australia is that there are so many similarities to homeContinue reading “Back to Blighty blues”

Mild relapse?

I have been on beta interferon (Rebif) for nearly two years now and in that time I haven’t had a relapse. Or have I? Beta interferon is supposed to reduce the likelihood of having a relapse and minimise the effects if you do get one. Back in January 2009, when I came off gabapentin, I experiencedContinue reading “Mild relapse?”

RIP John Hicklenton

The graphic artist and subject of the documentary “Here’s Johnny!” John Hicklenton died last month in an assisted suicide, taking his MS with him. As evidenced by the film, he would anthropomorphise his illness – he likened it to both a terrorist and being in a bad relationship. It was reported that prior to hisContinue reading “RIP John Hicklenton”

Yearly neurologist meeting – 2009

Yesterday, I saw my neurologist’s registrar – Dr Somebodyorother plus one student. I had to recap my entire MS history from Day 1 again. I always find it difficult to remember the relapses prior to diagnosis as I didn’t recognise them for what they were at the time. I did my usual set of tests.Continue reading “Yearly neurologist meeting – 2009”

Drug experiments

It’s official, I have been told by my GP that I can experiment with drugs. Well, actually, no. I have been given the go ahead to increase the dosage of the amitriptyline to try and weigh up the pros of pain relief and the cons of the drowsy side-effects. The side-effects are something I haveContinue reading “Drug experiments”

My MS History – Part Six

After one more session of double-checking with the consultant where he had yet another student in tow – it seemed I was becoming a textbook example of nystagmus – it became apparent that the steroids really hadn’t done their job. So to suppress my existing symptoms I was prescribed Gabapentin. I had been given detailsContinue reading “My MS History – Part Six”