A postcard from Limboland

A month ago, if you asked me how tall I was, I’d say I was a six footer. It seems I’m not. I’m a five-foot-ten-and-a-half short-arse apparently, so essentially I’ve lost an inch and a half (4cm) in height. Even if you consider I may have always rounded up by half an inch, and I

Ocrevus checklist

I’ve just had part 1 of my initial Ocrevus infusion. Beforehand, I asked the MS community on Twitter for their top tips for infusion day and I thought I’d combine them with my observations so that I can share them here. This may be useful for new Ocrevus patients, and I’ll also refer to them

Eye and blood appointments

I went to see the opthalmologist and orthoptist last month as a follow up to my December 2009 appointment. It took 65 minutes of waiting in a waiting room  before I was eventually seen. Everything is fine with my eyes – pressure, field test, colour vision, optic nerve are all OK. Yes, I have had

The morning after… groan!

I felt very rough this morning. All my joints ached and I even felt a bit nauseous. I injected at 10.40ish last night. I woke at around 2am to see to one of my children when I felt groggy with sleep but fine otherwise. I finally woke up at 6.30 this morning and felt as

Double trouble?

My jobs for this evening include stripping wallpaper, bathtime and bedtime for the kids, wrapping Christmas presents, going to the supermarket to stock up on festive goodies, shifting the sofa and covering it with dust sheets ready for the plasterer… oh! and shooting up with Rebif (left thigh night tonight). Well it’s full dose time,