Hi! How are you?

“I’m pretty shit to be honest. I’m in the crap gap. “Sorry, I should explain. It’s that time between my medication wearing off and my next dose or infusion. I get an infusion every six months… “In hospital, yeah. I have to go to Sheffield for it. I get a day off from work for

A postcard from Limboland

A month ago, if you asked me how tall I was, I’d say I was a six footer. It seems I’m not. I’m a five-foot-ten-and-a-half short-arse apparently, so essentially I’ve lost an inch and a half (4cm) in height. Even if you consider I may have always rounded up by half an inch, and I

Blitzkrieg

One of the things my brand new neurologist did for me when I met him earlier this year is confirm my diagnosis of restless legs syndrome (RLS). It’s something that I’ve been wondering about, on and off, pretty much since diagnosis, so it’s ‘nice’ to have it confirmed. It’s not a symptom of MS, but

My other ailment

“You’re looking well.” There’s a lot of messages on MS related social media sites from annoyed MSers who hate to be told they’re looking well. Of course the reasoning behind this is that MS is an invisible disease and while I may look OK on the outside… blah blah blah – you get the picture.

The Beta Interferon blues – update

After just two injections I can feel the familiar feelings returning. Aside from the flu-like side effects (achey joints), I have been waking up, not suicidal, but with little enthusiasm for life shall we say? One phonecall to my MS nurse later and I can announce that Rebif and I are officially no longer an item.

The Beta Interferon blues.

I’m about to go back on Rebif after a four week trial period of coming off it. It wouldn’t be the first time I’ve done this, I tend not to take it on holiday (just a hassle) or over Christmas (to give myself a break). So, have I noticed any changes? On the negative side,