Foot-ups, Fampridine and familiar faces

The other day was a good day for me and my MS. Not because I felt any better or any different, but because I got a few things sorted, and I dealt with positive healthcare professionals as I did so. Firstly, I had a hospital appointment with a cheery orthotics specialist to fit me withContinue reading “Foot-ups, Fampridine and familiar faces”

Elf and wellbeing

In 2019, I fulfilled a lifelong travel dream when my wife surprised me by booking a few days in Iceland. I’m a geology graduate and although my degree was a long time ago it was still a big thrill to be standing on the mid-ocean ridge surrounded by a ‘young’ basalt landscape. In fact IContinue reading “Elf and wellbeing”

Feeling the heat

Well, last week was a scorcher. So much so, that I gave up on Fathers’ Day activities halfway through the afternoon and went to bed for a bit. The following day, I dressed for work, drove my youngest to school, and then turned round and headed back home I felt so rough. Again, I hadContinue reading “Feeling the heat”

Back to Blighty blues

I’m just back in the UK after a fabulous trip to Australia and Singapore. I don’t normally do this, but while I was away, I re-evaluated things a little. What I should be doing to make myself happier, more comfortable and healthier. The thing about Australia is that there are so many similarities to homeContinue reading “Back to Blighty blues”

Relapse

Just thought I’d let y’all know that I had a relapse in the last couple of months. It mainly involved vertigo and dizziness, so I spent a good couple of weeks crashing into things, nearly falling over, feeling nauseous and actually vomiting a few times. It also involved some fatigue, L’Hermitte’s and a not unpleasant hotContinue reading “Relapse”

Mild relapse?

I have been on beta interferon (Rebif) for nearly two years now and in that time I haven’t had a relapse. Or have I? Beta interferon is supposed to reduce the likelihood of having a relapse and minimise the effects if you do get one. Back in January 2009, when I came off gabapentin, I experiencedContinue reading “Mild relapse?”

“Sorry, there’s nothing we can do”

There is a stand up routine by Sean Lock where he recounts being told off for swearing by belligerent airport staff. His exasperated reply finishes with “This is exactly the sort of occasion swearing was f***ing invented for!” Excuse me a moment… a$%e!…  &u$%&!!…  (%d%*!!! %^&*!!…   f&*^:~!!…  ~*()&*&^$%$”!!!!!! There – out of my system… No, wait,Continue reading ““Sorry, there’s nothing we can do””

Doublevision

Wahay! I am off to see an orthoptist tomorrow to talk doublevision. Doublevision and eye movement problems in general have been my one constant since I had my last major relapse in 2008. My MS history is littered with symptoms and side effects that have come and gone or have fluctuated with other external factorsContinue reading “Doublevision”

Birthday hangover

It was my birthday at the weekend and now I’m hungover. I must have had a good time… Hmmmm… Yes, I guess I did… Saturday started by taking my eldest to her dance class and back. I started my pottery tuition in the afternoon and on Saturday evening, I ventured into Sheffield to see ReverendContinue reading “Birthday hangover”

Experience of fatigue

Up to eighty-seven per cent of people with MS, including myself, experience fatigue at some point. It is important to us that people don’t think fatigue is the same as tiredness. It is the most draining experience imaginable and it can happen for no apparent reason. I went to a talk by an occupational therapist theContinue reading “Experience of fatigue”