Making lemonade #2

Way back when I started secondary school, a rumour went around that all the boys would need a medical during the first term. This would involve a procedure where a nurse would hold our testicles while we coughed. This never happened, of course, but a part of me believed it. It made the eleven yearContinue reading “Making lemonade #2”

Relapse

Just thought I’d let y’all know that I had a relapse in the last couple of months. It mainly involved vertigo and dizziness, so I spent a good couple of weeks crashing into things, nearly falling over, feeling nauseous and actually vomiting a few times. It also involved some fatigue, L’Hermitte’sĀ and a not unpleasant hotContinue reading “Relapse”

MS Trust open door

open door is the quarterly newsletter from the MS Trust. It largely reports on research results and the like, but despite this, is very readable. The current issue (just arrived) deals with posture, depression, misleading stem cell treatments and the impact of progressive MS on family life amongst other things. Items that caught my eye:Continue reading “MS Trust open door”

The eyes (will) have it

I have been waiting for two months for the letter deferring me to my local hospital eye dept. (I need glasses to correct my doublevision). I chased my neurologist up over the phone today. My Uber-Neurologist’s secretary apologised on behalf of the consultant (previously referred to as Dr Somebodyorother) who saw me, explaining that theyContinue reading “The eyes (will) have it”

One year on …

Today is the first anniversary of my diagnosis (see MS History – part two). Health professional bodycount so far. Starting with the first GP visit last year, the bodycount is as follows GPs 4 Practice Nurses 2 MS nurse 1 Ward nurse 1 Occupational Health nurse 1 Phlebotomists 6 (estimate) Physiotherapists 1 Neurologists 5 Neuro-psychologistsContinue reading “One year on …”

MS Awareness week – Limboland haiku sequence

Hello all It is Multiple Sclerosis (MS) Awareness Week across the globe. To mark this, I have written the following haiku sequence. Regular readers will know that I was diagnosed with Relapsing Remitting MS in 2008. Limboland was inspired by the journey to diagnosis. Limboland no hint of a smile –for once my doctor says“takeContinue reading “MS Awareness week – Limboland haiku sequence”

Drug experiments

It’s official, I have been told by my GP that I can experiment with drugs. Well, actually, no. I have been given the go ahead to increase the dosage of the amitriptyline to try and weigh up the pros of pain relief and the cons of the drowsy side-effects. The side-effects are something I haveContinue reading “Drug experiments”

I’m in pain…

It’s not pain as you would conventionally know it and it’s really difficult to describe the sensation. My feet and lower legs feel like they want to shrivel up and shrink into themselves with occasional stabs of more conventional pain from my toes. I used to describe it as a crawling sensation, but that doesn’tContinue reading “I’m in pain…”

My MS History – Part Six

After one more session of double-checking with the consultant where he had yet another student in tow – it seemed I was becoming a textbook example of nystagmus – it became apparent that the steroids really hadn’t done their job. So to suppress my existing symptoms I was prescribed Gabapentin. I had been given detailsContinue reading “My MS History – Part Six”

Health Professional Body-count

With my long-awaited referral to a neuropsychologist finally coming through and my work leave sheet bursting with hospital and GP appointments, I thought it might be amusing to tot up the number of health professionals I have met regarding my MS since last summer. Phlebotomists – 5 Neurologists – 4 General Practitioners – 4 RadiologistsContinue reading “Health Professional Body-count”