Just keep swimming

Well, I’ve just returned from a family holiday to Florida. It was 90% Disney just like the last time we went. Both my wife and my youngest are big Star Wars fans, so my youngest had a light sabre battle with Darth Vader and my wife got a hug from Chewbacca among the many highlights. If anything, it was just nice to have a fortnight away in 40 degree heat.

The return trip was a bit arduous though as it involved a faulty aircraft and a four hour wait on the tarmac in Philadelphia.

Phew!

Needless to say, sitting in such cramped quarters for such a long time while the captain repeatedly switched the plane off and then on again, is not good for me and my MS. I don’t sleep on flights anyway, I find it impossible, and for the six hours after the 2am take-off I think it’s fair to say I suffered a bit.

Anyway – I now know the following:

  • I like warm / hot weather. I’ve been suspecting this on previous holidays but now it’s official. A few years ago I would’ve said the opposite, but it’s far more pleasant to take it easy and carry around a t-shirt, shorts and sandals than jeans, coat, pullover etc. I feel much better for it.
  • Disabled loos in the places we visited seem to be an add-on to the existing gents as extra wide cubicles. This means that even if you feel justified using them they’ll be used by the general public anyway if the others are engaged. There doesn’t seem to be the same stigma around non-disabled usage as at home.
  • How to swim.

So there you go, all things I . . . hold on a minute – what was the last one again?

Yes, that’s right, I’m so proud of my older teenaged daughter, who succeeded where so many have failed, by patiently and good naturedly curing me of my 45 year deep-seated phobia of water and swimming pools. I’ve faced up to some pretty scary things in life both generally and (especially) as an MS patient, but my fear of swimming is right up there.

“Think back to the dawn of time and of all the millions of people who have ever died. How many of them drowned in a swimming pool?” she smiled as she persuaded me to doggy paddle a handful of metres to the edge of our villa’s pool.

Without batting an eyelid she skillfully turned me from someone who panicked each time I slightly lost my balance into someone swimming the backstroke, breast-stroke and even the crawl (with my head underwater the length of the pool), within an hour.

I ended up tiring myself out making up for lost time. Every day afterwards I gave myself a big grin by double-checking that I hadn’t forgotten how to do it.

The next step, I feel, is working out how to breathe and swim at the same time, so I might be looking at taking extra lessons now that I’m back in Blighty.

The thing that amazes me though, is how easy it was to take that extra step and stop panicking. Once I realised how I naturally float, I was away. I did the starfish float, I tried to get my bum to touch the floor of the pool and failed, I even held my breath and tucked my knees into my chest and let myself roll in the water.

Why on earth didn’t I do all this years ago?

Also when I mention it to others, I find that most people I know haven’t really made it to the next rung of the ladder. I suddenly seem to be in the middle of a sea of people who aren’t that proficient at swimming. When I jokingly mentioned the fact that I like swimming backstroke because I can actually breathe, a workmate agreed and said in the event of a ship going down he’d backstroke to the lifeboat for that very reason.

Is it difficult to progress as a swimmer, then? Is it because most people don’t swim regularly enough to have built up a stamina for it? All these years I’ve been labouring under the misapprehension that everyone is as good as Ellie Simmonds or Steph Millward albeit a good deal slower.

Of course, my daughter and all her friends haven’t reached a lifetime of apathy yet, so they’re all fantastic swimmers apparently.

So why have I spent a lifetime as a non swimmer? Well, I mainly blame moving house from Manchester to the rural redneck backwater of East Anglia for a few years as a kid; my crippling shyness at the time, coupled with an inexperience of swimming pools, particularly freezing open air school ones and the fact that goggles didn’t seem to have been invented in the late 70s / early 80s. Also, the lack of encouragement from teachers and parents.

Various family members did attempt to teach me to swim, but they tried to do so while up to their chest in the balmy sub-tropical waters of the North Sea. Claiming, while I steadfastly kept my arms crossed and my feet anchored to a pebbly beach, that their sadistic dads and uncles did the same to them so why wouldn’t it work with me? Or they’ve dangled the ten-year-old me by the ankles off the ends of piers for fun – memories I’ve obviously repressed until now.

Even as a teenager, I pulled an outstretched hand (and the fully track-suited swimming teacher attached to it) into the deep end of the school pool after thrashing around in a panic when a float torpedoed from my slippery grasp.

If I can keep on swimming in an environment I’m comfortable with, it could be just the exercise I need. The local MS Society branch have a pool meet-up one evening a week in a special school within walking distance. Here they obviously have hoists and the like for those with mobility issues but also a nice warm pool. So I might explore that option if it’s suitable. Also, the local authority where I live have nice friendly looking teachers who do group and one-on-one sessions for adults.

Until then I’m looking forward to my next holiday – camping in Cornwall – and yes, I’ve made sure there’s a pool.

Mild relapse?

I have been on beta interferon (Rebif) for nearly two years now and in that time I haven’t had a relapse.

Or have I?

Beta interferon is supposed to reduce the likelihood of having a relapse and minimise the effects if you do get one. Back in January 2009, when I came off gabapentin, I experienced a temporary worsening of symptoms such as fatigue, pain, heavy legs and one instance of flashy lights in front of my eyes. Was it a minor relapse as the neurologist thought? Was it the side-effects of coming off the gabapentin? Or was it the underfoot rumbles of the MS volcano?

I don’t know. I suspect all three depending on when you ask me.

I have a similar thing going on at the moment. In addition to the usual symptoms, I have had a couple of weeks where I have had a worsening of pain in my arms especially, mild spasticity in my left arm and both feet, hands that feel as if they are gently transporting a cactus as opposed to the usual background tingle, heavy legs again, fatigue, mild vertigo, uncontrolled movements in my calf muscles and last night, definite phosphenes in my right field of vision as I moved my eyes around.

So is it the hot weather?

Is it the MS Monster rolling over in it’s sleep?

Or is it a mild relapse?

I’m not inclined to bother anybody about it until my next yearly meet up with the neuro. My neuro is “running late” this year, apparently. Running late in the sense of he can’t see me in June as would normally happen, but will be able to when his appointments begin again in August, and the 115 people in front of me in the queue have been seen first.

In the meantime, I have restarted taking the amitriptyline.