“C’mon get in the car. Let’s go for a ride somewhere…”

“So, where are you guys from? “The UK? Do you guys know Totten-Ham? “See, I follow your soccer and I support Totten-Ham Hotspur. I’m a Hotspur fan. “Do you know why I support Hotspur? “Well, I’m a fan of the Dave Clarke 5, and they’re from Totten-Ham, and they support Hotspur. “Do you know the

The Magical Brain

Blimey, this feels a bit like a newsletter, but I think there’s a few updates and loose ends on recent posts to tie up, so here goes: Fampridine I have my first official batch of fampridine to help with my mobility. As mentioned before, I hadn’t really noticed how much it was helping me walk

Fampridine trial thoughts

I’ve just come off my trial period of Fampridine and I’ve decided to carry on with it. Fampridine is a potassium channel blocker which ultimately means that messages can travel along nerves more efficiently. It’s prescribed for MS patients like me, with a walking disability. It’s something I would take alongside the other medications I’m

“It’s a miracle!”

I don’t want to tempt fate and I don’t want to count chickens before they’ve hatched or any of that but… …It seems I can walk again. Now, this doesn’t mean I’ve been to see some Jim Jones style preacher, and it also doesn’t mean I’ve quaffed some magical elixir derived from a temple in

Blitzkrieg post-script

Well, everything was a bit miserable at the end of my last post so apologies for that. I’m a week or two further along the line now and I’ve been applying the patches to their designated places in the literature and experimenting with each zone. I’ve found that the only place that works is my

Blitzkrieg

One of the things my brand new neurologist did for me when I met him earlier this year is confirm my diagnosis of restless legs syndrome (RLS). It’s something that I’ve been wondering about, on and off, pretty much since diagnosis, so it’s ‘nice’ to have it confirmed. It’s not a symptom of MS, but

Mourning sickness

I recently heard that it’s a good idea to find something to mourn with MS. Something in life that MS has taken from you. Maybe it’s a good night’s sleep, or the ability to run a long distance or that you’re no longer the party animal you once were. It could be all sorts of

Baclofen fun

Well it’s the new year (happy new year!) and after over-indulging over the festive period, my thoughts have naturally turned to new year’s resolutions. Normally it’s something to do with losing a bit of weight and becoming fitter, even if it’s just a little bit fitter and being able to take my belt in a

Let’s get physio.

Here’s a video showing a typical minute in the life of my calf muscles. Yesterday I added to my Panini sticker book of health professionals by seeing a neurophysiotherapist for the first time. It was mainly about leg pain and my twitchy calves, but also about my general clumsiness, fatigue and my general state of

Feeling the heat

Well, last week was a scorcher. So much so, that I gave up on Fathers’ Day activities halfway through the afternoon and went to bed for a bit. The following day, I dressed for work, drove my youngest to school, and then turned round and headed back home I felt so rough. Again, I had