I’m in pain…

It’s not pain as you would conventionally know it and it’s really difficult to describe the sensation. My feet and lower legs feel like they want to shrivel up and shrink into themselves with occasional stabs of more conventional pain from my toes. I used to describe it as a crawling sensation, but that doesn’tContinue reading “I’m in pain…”

My MS History – Part Six

After one more session of double-checking with the consultant where he had yet another student in tow – it seemed I was becoming a textbook example of nystagmus – it became apparent that the steroids really hadn’t done their job. So to suppress my existing symptoms I was prescribed Gabapentin. I had been given detailsContinue reading “My MS History – Part Six”

My MS History – Part Five

Between visiting the two consultants, I needed to do my research and also go for a lumbar puncture. I hated the steroids, they had the dual effect of causing severe heartburn, while simultaneously making me incredibly hungry. At the time it seemed that they didn’t do me any good. Particularly as in the following weeks,Continue reading “My MS History – Part Five”

My MS History – Part Four

I had a job interview in two days time. With a rare evening free of what I called brain fog, I was sitting at home preparing a presentation for it. My wife, unable to take the wait, had earlier phoned my neurologist to press him for the results of my MRI. As I was staringContinue reading “My MS History – Part Four”

Relapse spotting

Well, I guess this goes to show how difficult it can be to spot a relapse, sometimes. I spoke to H (my nurse) today about the optic neuritis and heavy legs that I have been experiencing over the last few days. She thought the optic neuritis sounded like I was experiencing a small relapse, butContinue reading “Relapse spotting”

So long Gabapentin!

With the backing of my GP, I have ditched Gabapentin. It has been making me feel crap for a while, now. The main side effects being fatigue and hallucinations. I was starting to fall asleep by 7pm every day. As an experiment, I tried a couple of days over Christmas without taking the pills andContinue reading “So long Gabapentin!”

The morning after… groan!

I felt very rough this morning. All my joints ached and I even felt a bit nauseous. I injected at 10.40ish last night. I woke at around 2am to see to one of my children when I felt groggy with sleep but fine otherwise. I finally woke up at 6.30 this morning and felt asContinue reading “The morning after… groan!”

Double trouble?

My jobs for this evening include stripping wallpaper, bathtime and bedtime for the kids, wrapping Christmas presents, going to the supermarket to stock up on festive goodies, shifting the sofa and covering it with dust sheets ready for the plasterer… oh! and shooting up with Rebif (left thigh night tonight). Well it’s full dose time,Continue reading “Double trouble?”

Life with MS – Part Two – Medication

I have been dosed up this year, like I have never been dosed up before. I mentioned in an earlier post that having MS is a little bit like having an uninvited monster following you round everywhere (mine has been clinging onto my right leg all morning). In order to stop the monster from suddenlyContinue reading “Life with MS – Part Two – Medication”