Just keep swimming

Well, I’ve just returned from a family holiday to Florida. It was 90% Disney just like the last time we went. Both my wife and my youngest are big Star Wars fans, so my youngest had a light sabre battle with Darth Vader and my wife got a hug from Chewbacca among the many highlights.Continue reading “Just keep swimming”

Ash and We Are Scientists team up for the MS Society.

Yay – I have always had a bit of a soft spot for Ash, so I was delighted to see they have recorded a version of Washington Parks by a guy called Robert Manning. Robert was diagnosed with MS a few years ago and all proceeds go to the MS Society. Find out how youContinue reading “Ash and We Are Scientists team up for the MS Society.”

Calvert Trust holiday

The Calvert Trust has teamed up with the UK MS Society to offer a taster weekend for people with MS at one of its centres in Kielder, Northumberland in October. The price includes accomodation for two nights in scandinavian style cabins, meals, and participation in any of the outdoor pursuits including an aromatherapy pool, archery,Continue reading “Calvert Trust holiday”

RIP Allan Robb

I see the media are reporting that the BBC Radio journalist Allan Robb has died. Allan had MS. I don’t know what type of MS it was and I don’t know how he died. I am assuming that the MS was a contributory factor in his death as the media are implying that his deathContinue reading “RIP Allan Robb”

Compare and contrast

Compare and contrast the Multiple Sclerosis International Federation (MSIF) World MS Day video from 2009 (positive portrayal of MS) with an Australian MS Society advert from 2007 (negative portrayal of MS) and read on… The first time I saw “Beautiful Day” it brought tears to my eyes (and I absolutely hate U2). I guess becauseContinue reading “Compare and contrast”

Life with MS – analogies

There seem to be analogies every which way you turn when you discuss MS with other (oh heck!) “sufferers”. The most popular one must be the MS MonSter (see what I did with the letters?). The one that sits on your chest in the morning and stops you getting up, demands a piggyback if youContinue reading “Life with MS – analogies”

Experience of fatigue

Up to eighty-seven per cent of people with MS, including myself, experience fatigue at some point. It is important to us that people don’t think fatigue is the same as tiredness. It is the most draining experience imaginable and it can happen for no apparent reason. I went to a talk by an occupational therapist theContinue reading “Experience of fatigue”

MS Explained

Just a note to say that the MS Trust (UK) have updated their marvellous booklet MS Explained. This is a little bit more involved than some of the literature out there. While not for everyone, it explains the neurology and immunology aspects of MS very well in layman’s terms. I would heartily recommend this publicationContinue reading “MS Explained”