As if by magic, a support network appeared

Two items of fantastic news here in North Derbyshire. Firstly, our wonderful MS nurse has teamed up with the local MS Society branch to organise a series of weekly talks/discussions/lectures titled “Getting to grips with MS” for the newly diagnosed. Topics are to include exercise, benefits, developments in treatments, coming to terms with the diagnosis,Continue reading “As if by magic, a support network appeared”

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I have been reading a recent issue of ms matters (quarterly MS Society magazine). It had invited readers as part of MS Week, what they thought was the most common misconceptions around the disease – usual stuff – wheelchairs; appearing to look well etc. One of the more common misconceptions centred around fatigue, how itContinue reading “ffffffaaaaaaaatiiiiiiiiiiiiguuuuuuueeeeeeeee…… er.. [ctrl-alt-del] Damn!.. Didn’t work.”

Health talk online

Even with all the support in the world, diagnosis of a chronic illness can be a dreadfully lonely experience. While the MS Society and the MS Trust and the nurse assigned to me were all utterly wonderful when I was diagnosed, I think what I needed (need) more than anything was to connect with otherContinue reading “Health talk online”

MS Awareness week – Limboland haiku sequence

Hello all It is Multiple Sclerosis (MS) Awareness Week across the globe. To mark this, I have written the following haiku sequence. Regular readers will know that I was diagnosed with Relapsing Remitting MS in 2008. Limboland was inspired by the journey to diagnosis. Limboland no hint of a smile –for once my doctor says“takeContinue reading “MS Awareness week – Limboland haiku sequence”

My MS History – Part Five

Between visiting the two consultants, I needed to do my research and also go for a lumbar puncture. I hated the steroids, they had the dual effect of causing severe heartburn, while simultaneously making me incredibly hungry. At the time it seemed that they didn’t do me any good. Particularly as in the following weeks,Continue reading “My MS History – Part Five”