The aftermath

Warning: this post contains experience of intense pain and some details of sensitive medical procedures. Sometimes I think of my MS as a monster. A monster who is always there tugging at my neck, poking me in the back, tripping me up or holding my ankles like a deadweight. As a child of the ‘70s,

Foot-ups, Fampridine and familiar faces

The other day was a good day for me and my MS. Not because I felt any better or any different, but because I got a few things sorted, and I dealt with positive healthcare professionals as I did so. Firstly, I had a hospital appointment with a cheery orthotics specialist to fit me with

Back to square one

Just like the election of a pope, or the announcement of the winner in some Saturday prime time family entertainment bollocks, I expect you’re all on tenterhooks wondering which disease modifying medication I’m going to plump for. I don’t know 100%, but here’s my quick notes so far (apologies for superficiality): Beta Interferon (Rebif, Avonex,

Sativex to get a licence in the UK

According to the MS Trust, once the wording on the patient information document has been approved, Sativex will be getting NICE approval in the UK as early as this month (April 2010). My neurologist dismissed Sativex at my last yearly meeting, so it will be interesting to see his position in June. I need something

MS Trust open door

open door is the quarterly newsletter from the MS Trust. It largely reports on research results and the like, but despite this, is very readable. The current issue (just arrived) deals with posture, depression, misleading stem cell treatments and the impact of progressive MS on family life amongst other things. Items that caught my eye: