“I’m pretty shit to be honest. I’m in the crap gap. “Sorry, I should explain. It’s that time between my medication wearing off and my next dose or infusion. I get an infusion every six months… “In hospital, yeah. I have to go to Sheffield for it. I get a day off from work forContinue reading “Hi! How are you?”
Tag Archives: Ocrelizumab
The Magical Brain
Blimey, this feels a bit like a newsletter, but I think there’s a few updates and loose ends on recent posts to tie up, so here goes: Fampridine I have my first official batch of fampridine to help with my mobility. As mentioned before, I hadn’t really noticed how much it was helping me walkContinue reading “The Magical Brain”
Postcard from Osteoporopolis
Warning: Tired travel analogies may continue to be employed in this post. “I know the C word and the F word. The C word is cor blimey, and the F word is flippin’ ‘eck” – Rat, lead singer of Chesterfield based punk band The Bland on stage at the Take Two club, Attercliffe c.1988 It’sContinue reading “Postcard from Osteoporopolis”
Accepting the stick man
As I mentioned in my last post, I have recently started Ocrelizumab infusions. After a year of lockdown, this has involved a couple of trips to the city for long days in hospital hooked to a drip and, face-to-face interaction with other living and breathing human beings outside of the family bubble. I have noticedContinue reading “Accepting the stick man”
Ocrevus checklist
I’ve just had part 1 of my initial Ocrevus infusion. Beforehand, I asked the MS community on Twitter for their top tips for infusion day and I thought I’d combine them with my observations so that I can share them here. This may be useful for new Ocrevus patients, and I’ll also refer to themContinue reading “Ocrevus checklist”
Gloves off
Well, I knew I’d be tempting fate to say that I was feeling fitter and more mobile. It seems that the old MonSter has found a chink in the armour and has left its footprint behind in the form of a few new spots on the MRI. My neurologist has decided to advise exactly whatContinue reading “Gloves off”
It’s about quality of life
As hinted at in my previous post, after a couple of nasty infections, my dad’s in his final days. At the time of writing he’s being made comfortable. He’s not in any pain and he doesn’t really have the strength or inclination to eat or drink, other than a couple of spoons of mashed upContinue reading “It’s about quality of life”
Dave's Magical Brain 