It’s been a while..

I knew I hadn’t updated this blog for ages but I didn’t realise the last time I had anything to say was September 2015. I’ve been busy caring for an elderly relative (now in residential care) and editing a poetry journal (now resigned), so I’ve either been exhausted or lacking the will and free timeContinue reading “It’s been a while..”

Hindsight

My first big relapse was in 2004 with a numb face, a headache that wouldn’t shift, optic neuritis and vertigo. It’s strange to think of it now, but the medical profession couldn’t explain the cause at the time. Probably because I presented the symptoms individually, rather than all in one go. I then experienced aContinue reading “Hindsight”

Mild relapse?

I have been on beta interferon (Rebif) for nearly two years now and in that time I haven’t had a relapse. Or have I? Beta interferon is supposed to reduce the likelihood of having a relapse and minimise the effects if you do get one. Back in January 2009, when I came off gabapentin, I experiencedContinue reading “Mild relapse?”

Eye and blood appointments

I went to see the opthalmologist and orthoptist last month as a follow up to my December 2009 appointment. It took 65 minutes of waiting in a waiting room  before I was eventually seen. Everything is fine with my eyes – pressure, field test, colour vision, optic nerve are all OK. Yes, I have hadContinue reading “Eye and blood appointments”

One year on …

Today is the first anniversary of my diagnosis (see MS History – part two). Health professional bodycount so far. Starting with the first GP visit last year, the bodycount is as follows GPs 4 Practice Nurses 2 MS nurse 1 Ward nurse 1 Occupational Health nurse 1 Phlebotomists 6 (estimate) Physiotherapists 1 Neurologists 5 Neuro-psychologistsContinue reading “One year on …”

My MS History – Part Five

Between visiting the two consultants, I needed to do my research and also go for a lumbar puncture. I hated the steroids, they had the dual effect of causing severe heartburn, while simultaneously making me incredibly hungry. At the time it seemed that they didn’t do me any good. Particularly as in the following weeks,Continue reading “My MS History – Part Five”

Relapse spotting

Well, I guess this goes to show how difficult it can be to spot a relapse, sometimes. I spoke to H (my nurse) today about the optic neuritis and heavy legs that I have been experiencing over the last few days. She thought the optic neuritis sounded like I was experiencing a small relapse, butContinue reading “Relapse spotting”

Life with MS – Part One – Symptoms

I don’t want to come over all “woe is me” because there are plenty of people out there on the internet trying to out-do each other with their bad symptoms and there are many others with MS who have it much worse than I do (my old neighbour who also has MS, doesn’t recognise meContinue reading “Life with MS – Part One – Symptoms”

My MS History – Part One

Once somebody tells you, you have MS, you start to put a jigsaw together. You wonder whether that strange tingling sensation you had in your right arm last year had something to do with it, or in my case the vertigo diagnosis from the previous year and the little numb patch between my big toeContinue reading “My MS History – Part One”