Let’s get physio.

Here’s a video showing a typical minute in the life of my calf muscles. Yesterday I added to my Panini sticker book of health professionals by seeing a neurophysiotherapist for the first time. It was mainly about leg pain and my twitchy calves, but also about my general clumsiness, fatigue and my general state ofContinue reading “Let’s get physio.”

The sting

Well, I’ve been taking Copaxone (Glatiramer Acetate) for about a week now. I administered my first injection under the gaze of my wonderful MS nurse last Monday. When I was on Rebif I didn’t really inject into my arm or leg, favouring the fattier parts of my anatomy. It has been my arse and myContinue reading “The sting”

Back to Blighty blues

I’m just back in the UK after a fabulous trip to Australia and Singapore. I don’t normally do this, but while I was away, I re-evaluated things a little. What I should be doing to make myself happier, more comfortable and healthier. The thing about Australia is that there are so many similarities to homeContinue reading “Back to Blighty blues”

Mild relapse?

I have been on beta interferon (Rebif) for nearly two years now and in that time I haven’t had a relapse. Or have I? Beta interferon is supposed to reduce the likelihood of having a relapse and minimise the effects if you do get one. Back in January 2009, when I came off gabapentin, I experiencedContinue reading “Mild relapse?”

Dental mentalism

I went to the dentists yesterday. I love the dentists. I am seen by student dentists in their final year at university and because of this, I a) get free treatment and b) get some of the most careful attentive care possible. Everything is double-checked by a doctor from the university dental school and ninety-nineContinue reading “Dental mentalism”

Sativex to get a licence in the UK

According to the MS Trust, once the wording on the patient information document has been approved, Sativex will be getting NICE approval in the UK as early as this month (April 2010). My neurologist dismissed Sativex at my last yearly meeting, so it will be interesting to see his position in June. I need somethingContinue reading “Sativex to get a licence in the UK”

Life with MS – analogies

There seem to be analogies every which way you turn when you discuss MS with other (oh heck!) “sufferers”. The most popular one must be the MS MonSter (see what I did with the letters?). The one that sits on your chest in the morning and stops you getting up, demands a piggyback if youContinue reading “Life with MS – analogies”

New weirdness

Starting at 1pm or thereabouts yesterday afternoon, my right leg went cold. The sort of cold you experience when you suck on a strong peppermint and then breath in really fast. My right leg went peppermint cold. Oh and it felt dripping wet as well. Needless to say, in reality, it was warm and dry. No incontinenceContinue reading “New weirdness”

Doublevision

Wahay! I am off to see an orthoptist tomorrow to talk doublevision. Doublevision and eye movement problems in general have been my one constant since I had my last major relapse in 2008. My MS history is littered with symptoms and side effects that have come and gone or have fluctuated with other external factorsContinue reading “Doublevision”