“It’s a miracle!”

I don’t want to tempt fate and I don’t want to count chickens before they’ve hatched or any of that but… …It seems I can walk again. Now, this doesn’t mean I’ve been to see some Jim Jones style preacher, and it also doesn’t mean I’ve quaffed some magical elixir derived from a temple inContinue reading ““It’s a miracle!””

It’s been a while..

I knew I hadn’t updated this blog for ages but I didn’t realise the last time I had anything to say was September 2015. I’ve been busy caring for an elderly relative (now in residential care) and editing a poetry journal (now resigned), so I’ve either been exhausted or lacking the will and free timeContinue reading “It’s been a while..”

Hindsight

My first big relapse was in 2004 with a numb face, a headache that wouldn’t shift, optic neuritis and vertigo. It’s strange to think of it now, but the medical profession couldn’t explain the cause at the time. Probably because I presented the symptoms individually, rather than all in one go. I then experienced aContinue reading “Hindsight”

Relapse

Just thought I’d let y’all know that I had a relapse in the last couple of months. It mainly involved vertigo and dizziness, so I spent a good couple of weeks crashing into things, nearly falling over, feeling nauseous and actually vomiting a few times. It also involved some fatigue, L’Hermitte’s and a not unpleasant hotContinue reading “Relapse”

Mild relapse?

I have been on beta interferon (Rebif) for nearly two years now and in that time I haven’t had a relapse. Or have I? Beta interferon is supposed to reduce the likelihood of having a relapse and minimise the effects if you do get one. Back in January 2009, when I came off gabapentin, I experiencedContinue reading “Mild relapse?”

New weirdness

Starting at 1pm or thereabouts yesterday afternoon, my right leg went cold. The sort of cold you experience when you suck on a strong peppermint and then breath in really fast. My right leg went peppermint cold. Oh and it felt dripping wet as well. Needless to say, in reality, it was warm and dry. No incontinenceContinue reading “New weirdness”

Doublevision

Wahay! I am off to see an orthoptist tomorrow to talk doublevision. Doublevision and eye movement problems in general have been my one constant since I had my last major relapse in 2008. My MS history is littered with symptoms and side effects that have come and gone or have fluctuated with other external factorsContinue reading “Doublevision”

Experience of fatigue

Up to eighty-seven per cent of people with MS, including myself, experience fatigue at some point. It is important to us that people don’t think fatigue is the same as tiredness. It is the most draining experience imaginable and it can happen for no apparent reason. I went to a talk by an occupational therapist theContinue reading “Experience of fatigue”

Yearly neurologist meeting – 2009

Yesterday, I saw my neurologist’s registrar – Dr Somebodyorother plus one student. I had to recap my entire MS history from Day 1 again. I always find it difficult to remember the relapses prior to diagnosis as I didn’t recognise them for what they were at the time. I did my usual set of tests.Continue reading “Yearly neurologist meeting – 2009”

Drug experiments

It’s official, I have been told by my GP that I can experiment with drugs. Well, actually, no. I have been given the go ahead to increase the dosage of the amitriptyline to try and weigh up the pros of pain relief and the cons of the drowsy side-effects. The side-effects are something I haveContinue reading “Drug experiments”