Fampridine trial thoughts

I’ve just come off my trial period of Fampridine and I’ve decided to carry on with it. Fampridine is a potassium channel blocker which ultimately means that messages can travel along nerves more efficiently. It’s prescribed for MS patients like me, with a walking disability. It’s something I would take alongside the other medications I’mContinue reading “Fampridine trial thoughts”

A postcard from Limboland

A month ago, if you asked me how tall I was, I’d say I was a six footer. It seems I’m not. I’m a five-foot-ten-and-a-half short-arse apparently, so essentially I’ve lost an inch and a half (4cm) in height. Even if you consider I may have always rounded up by half an inch, and IContinue reading “A postcard from Limboland”

Foot-ups, Fampridine and familiar faces

The other day was a good day for me and my MS. Not because I felt any better or any different, but because I got a few things sorted, and I dealt with positive healthcare professionals as I did so. Firstly, I had a hospital appointment with a cheery orthotics specialist to fit me withContinue reading “Foot-ups, Fampridine and familiar faces”

Accepting the stick man

As I mentioned in my last post, I have recently started Ocrelizumab infusions. After a year of lockdown, this has involved a couple of trips to the city for long days in hospital hooked to a drip and, face-to-face interaction with other living and breathing human beings outside of the family bubble. I have noticedContinue reading “Accepting the stick man”

“It’s a miracle!”

I don’t want to tempt fate and I don’t want to count chickens before they’ve hatched or any of that but… …It seems I can walk again. Now, this doesn’t mean I’ve been to see some Jim Jones style preacher, and it also doesn’t mean I’ve quaffed some magical elixir derived from a temple inContinue reading ““It’s a miracle!””

Sticking at it

I plucked up the courage to go down to my allotment the other day. The first proper visit of the year is always a bit daunting. I can see the allotment as it’s just behind where I live, so I know that my plot has spent a number of days recently under a foot orContinue reading “Sticking at it”