Foot-ups, Fampridine and familiar faces

The other day was a good day for me and my MS. Not because I felt any better or any different, but because I got a few things sorted, and I dealt with positive healthcare professionals as I did so. Firstly, I had a hospital appointment with a cheery orthotics specialist to fit me withContinue reading “Foot-ups, Fampridine and familiar faces”

Ocrevus checklist

I’ve just had part 1 of my initial Ocrevus infusion. Beforehand, I asked the MS community on Twitter for their top tips for infusion day and I thought I’d combine them with my observations so that I can share them here. This may be useful for new Ocrevus patients, and I’ll also refer to themContinue reading “Ocrevus checklist”

It’s about quality of life

As hinted at in my previous post, after a couple of nasty infections, my dad’s in his final days. At the time of writing he’s being made comfortable. He’s not in any pain and he doesn’t really have the strength or inclination to eat or drink, other than a couple of spoons of mashed upContinue reading “It’s about quality of life”

The Beta Interferon blues.

I’m about to go back on Rebif after a four week trial period of coming off it. It wouldn’t be the first time I’ve done this, I tend not to take it on holiday (just a hassle) or over Christmas (to give myself a break). So, have I noticed any changes? On the negative side,Continue reading “The Beta Interferon blues.”