The aftermath

Warning: this post contains experience of intense pain and some details of sensitive medical procedures. Sometimes I think of my MS as a monster. A monster who is always there tugging at my neck, poking me in the back, tripping me up or holding my ankles like a deadweight. As a child of the ‘70s,Continue reading “The aftermath”

Foot-ups, Fampridine and familiar faces

The other day was a good day for me and my MS. Not because I felt any better or any different, but because I got a few things sorted, and I dealt with positive healthcare professionals as I did so. Firstly, I had a hospital appointment with a cheery orthotics specialist to fit me withContinue reading “Foot-ups, Fampridine and familiar faces”

Thanks where it’s due for a badge of blue

OK, so purely in terms of disease progression and mobility it hasn’t been an easy year for me (pandemic? …what pandemic?) so I’d just like to give a shout out to my Derbyshire County Council colleagues in the Blue Badge team for processing my application and delivering a shiny new badge to me in lessContinue reading “Thanks where it’s due for a badge of blue”

Accepting the stick man

As I mentioned in my last post, I have recently started Ocrelizumab infusions. After a year of lockdown, this has involved a couple of trips to the city for long days in hospital hooked to a drip and, face-to-face interaction with other living and breathing human beings outside of the family bubble. I have noticedContinue reading “Accepting the stick man”

Ocrevus checklist

I’ve just had part 1 of my initial Ocrevus infusion. Beforehand, I asked the MS community on Twitter for their top tips for infusion day and I thought I’d combine them with my observations so that I can share them here. This may be useful for new Ocrevus patients, and I’ll also refer to themContinue reading “Ocrevus checklist”

Gloves off

Well, I knew I’d be tempting fate to say that I was feeling fitter and more mobile. It seems that the old MonSter has found a chink in the armour and has left its footprint behind in the form of a few new spots on the MRI. My neurologist has decided to advise exactly whatContinue reading “Gloves off”

“It’s a miracle!”

I don’t want to tempt fate and I don’t want to count chickens before they’ve hatched or any of that but… …It seems I can walk again. Now, this doesn’t mean I’ve been to see some Jim Jones style preacher, and it also doesn’t mean I’ve quaffed some magical elixir derived from a temple inContinue reading ““It’s a miracle!””