Inner spaceman

I don’t really do social media for the good of my mental health (apart from sharing pictures of my cats on Instagram), but it seems that MonSter Awareness Week has rolled around again, and this year the hashtag appears to be #MSUnfiltered which is a way for people to let loose and tell their storiesContinue reading “Inner spaceman”

MonSter syndrome

The other night, the MonSter made an appearance in one of my dreams. I rarely recall any of my dreams, but this is his debut as far as I can remember. I think I’m always able-bodied in my dreams. I do have a set of recurring nightmares that tend to crop up when I takeContinue reading “MonSter syndrome”

The FES SAS

The other day, I went for my first functional electrical stimulation (FES) appointment. I’d had a chat about FES with another MS patient at my most recent Ocrevus infusion. He’d told me about how it had changed his life from only being able to walk a few metres to being confident enough to walk ‘normally’…Continue reading “The FES SAS”

The Magical Brain #2

It has been a while since I’ve published anything on here. I have written posts but they didn’t come up to scratch in my opinion, so they never saw the light of day. So, with it being Christmas, I thought I’d send my equivalent of a round robin to just bring a few things upContinue reading “The Magical Brain #2”

Moving Swiftly on…

My late mum was the fount of all knowledge when it came to family history. She knew the names of all the distant cousins; who was born out of wedlock; who had died before their time and why; who had problems with alcohol; who was concealing their extra-marital affairs; who was LGBT in an eraContinue reading “Moving Swiftly on…”

Oi! Pedro! …No!

I’ve admired your films and enjoy them for their melodrama, irreverent humour, bold colour, glossy décor, quotations from popular culture, and complex narratives. I appreciate that desire, passion, family, and identity are among your most prevalent subjects in your films and I recognise that your work represents a cultural renaissance that followed the end ofContinue reading “Oi! Pedro! …No!”

Under the radar

When I reached the age of thirty, I was helping my father-in-law do some gardening when I bent over to pick up a leaf and I felt a twang somewhere in my lumbar region. This twang put me completely out-of-action for a week or so afterwards. My GP had simply smiled and said, “welcome toContinue reading “Under the radar”

Hi! How are you?

“I’m pretty shit to be honest. I’m in the crap gap. “Sorry, I should explain. It’s that time between my medication wearing off and my next dose or infusion. I get an infusion every six months… “In hospital, yeah. I have to go to Sheffield for it. I get a day off from work forContinue reading “Hi! How are you?”

An assault on the senses

I’ve looked deep into the eyes of the MonSter. When I did, everything shimmered with radiating rainbow coloured clouds. Whenever I glance to the left, he wiggles his outstretched claws and warps the atmosphere so that everything I see, I see twice. When I stroke my hands across his shaggy hide, my fingertips often tingle,Continue reading “An assault on the senses”